While Daddy, Bennett, and D-Daddy had a boys weekend in Austin, we had a girls weekend that included going to the Make-a-Wish Art Party. We only got to attend the last one last year so we were very excited to go again this year. Grace loves making the canvas paintings. I couldn't believe how much Maggie enjoyed herself. She sat really still and created some beautiful abstract paintings.
I can't believe that I forgot to get pictures of the finished products!
Sunday, September 22, 2013
ALL ABOUT MAGGIE
Maggie...
Also known as Mags, Magpie, Maggie the Moose, Magoo
The added blessing.
The one came along when we didn't know we needed her to complete our family.
Maggie is full of personality. We laugh all the time at her facial expressions.
She loves Yo Gabba Gabba, Minnie Mouse, Elmo, Princess Sofia. She loves her brother and sister. She lights up when they play together.
This one stole my heart.
**pictures by Megan Porta Photography
Also known as Mags, Magpie, Maggie the Moose, Magoo
The added blessing.
The one came along when we didn't know we needed her to complete our family.
Maggie is full of personality. We laugh all the time at her facial expressions.
She loves Yo Gabba Gabba, Minnie Mouse, Elmo, Princess Sofia. She loves her brother and sister. She lights up when they play together.
This one stole my heart.
**pictures by Megan Porta Photography
ALL ABOUT GRACE
Grace...
Also known as Gracie, Lulu, Gracie Lu, Buggy, Bug, G Lou
The fighter. She is known to be "light as a feather and tough as a boot."
She was born broken, but it hasn't slowed her down. She came prepared for a fight. She loves her brother and sister so much.
We call her the "picker." She loves to mess with everyone. She isn't happy unless she is "picking" on people. It makes her happy to mess with people.
She loves to dance. She loves to read. She loves to draw. She loves to play baby dolls. She loves Rapunzel from Tangled.
I love her spirit.
**pictures by Megan Porta Photography
Also known as Gracie, Lulu, Gracie Lu, Buggy, Bug, G Lou
The fighter. She is known to be "light as a feather and tough as a boot."
She was born broken, but it hasn't slowed her down. She came prepared for a fight. She loves her brother and sister so much.
We call her the "picker." She loves to mess with everyone. She isn't happy unless she is "picking" on people. It makes her happy to mess with people.
She loves to dance. She loves to read. She loves to draw. She loves to play baby dolls. She loves Rapunzel from Tangled.
I love her spirit.
**pictures by Megan Porta Photography
ALL ABOUT BENNETT
Bennett.....
Also known as B, Bee Super, B Boobah, Boobah
Also known as B, Bee Super, B Boobah, Boobah
My artistic boy. The first one to grab a piece of my heart and hang on tight.
I love this boy. He is caring and loving. He is truly the best big brother his sisters' could ever ask for. I have never seen a boy so concerned with his taking care of the little ones. I hope that it never changes.
He plays hard, too. He is always going full steam ahead. He loves Marvel superheroes, Teenage Mutant Ninja Turtles, and Legos.
Bennett is so artistic. He is extremely creative. He is constantly drawing, creating dances and shows, and recreating shows/movies.
Bennett....one in a million.
**pictures by Megan Porta Photography
STARTING OVER
Well, I somehow managed to delete everything off this blog when I was trying to change the template so I guess we will just get off to a fresh start. So frustrating! There were a lot of stories on here that I had completely forgotten about. So, here is to a fresh start!!
Thursday, March 29, 2012
Best of Intentions
I always have the best of intentions of posting here....sadly there are not enough hours in my day. Hopefully there will be a catch up post very soon. I have lots of thoughts swirling around in my head that would do better on paper. Soon......
Tuesday, February 7, 2012
CHD Awareness - Day 1
Today is the first day of Congenital Heart Defect Awareness Week! Look for lots of posts about CHD's this week and help us spread the word to raise awareness!!
7 FAQ’s
•
1.What is a congenital heart defect? CHD’s are structural problems with the heart present at birth. They result when a mishap occurs during heart development soon after conception and often before the mother is aware she is pregnant. Defects range in severity from simple to problems, such as “holes” between chambers of the heart, to very severe malformations, such as complete absence of one or more chambers or valves.
2.Who is at risk to have a child with a congenital heart defect? Anyone can have a child with a congenital heart defect. Out of 1000 births, 8 babies will have some form of CHD, most of which are mild. If you or other family members have already had a baby with a heart defect, your risk of having a baby with heart disease may be higher.
3.How many people in the United States have a congenital heart defect? Estimates suggest that about 1,000,000 Americans have a congenital heart defect. Approximately 35,000 babies are born with a defect each year.
4.Why do congenital heart defects occur? Most of the time we do not know. Although the reason defects occur is presumed to be genetic, only a few genes have been discovered that have been linked to the presence of heart defects. Rarely the ingestion of some drugs and the occurrence of some infections during pregnancy can cause defects.
5.How can I tell if my baby or child has a congenital heart defect? Severe heart disease generally becomes evident during the first few months after birth. Some babies are blue or have very low blood pressure shortly after birth. Other defects cause breathing difficulties, feeding problems, or poor weight gain. Minor defects rarely cause symptoms. While most heart murmurs in children are normal, some may be due to defects.
6.How serious is the problem? CHD’s are the most common birth defect and are the number one cause of death from birth defects during the first year of life. Nearly twice as many children die from CHD in the United States each year as die from all forms of childhood cancers combined. (author's note....Can you believe this statistic?? Another fact is that 5 times the amount of money spent on CHD research is spent on childhood cancer research!!) Over 91,000 life years are lost each year in the US due to congenital heart disease. Charges for care exceed 2.2 billion dollars, for inpatient surgery alone.
7.Are things improving? Definitely. Overall mortality has significantly declined over the past few decades. For example, in the 1960s and 1970s the risk of dying following congenital heart surgery was about 30% and today it is around 5%.
One of the things that I feel VERY strongly about is raising awareness about CHD's. They are everywhere. It is amazing how many people I have met and when they find out about Gracie....they know someone who had a CHD or had a CHD themselves. Why do you not hear about CHD's the way that you hear about other childhood diseases??
Do your part to help raise awareness!!
7 FAQ’s
•
1.What is a congenital heart defect? CHD’s are structural problems with the heart present at birth. They result when a mishap occurs during heart development soon after conception and often before the mother is aware she is pregnant. Defects range in severity from simple to problems, such as “holes” between chambers of the heart, to very severe malformations, such as complete absence of one or more chambers or valves.
2.Who is at risk to have a child with a congenital heart defect? Anyone can have a child with a congenital heart defect. Out of 1000 births, 8 babies will have some form of CHD, most of which are mild. If you or other family members have already had a baby with a heart defect, your risk of having a baby with heart disease may be higher.
3.How many people in the United States have a congenital heart defect? Estimates suggest that about 1,000,000 Americans have a congenital heart defect. Approximately 35,000 babies are born with a defect each year.
4.Why do congenital heart defects occur? Most of the time we do not know. Although the reason defects occur is presumed to be genetic, only a few genes have been discovered that have been linked to the presence of heart defects. Rarely the ingestion of some drugs and the occurrence of some infections during pregnancy can cause defects.
5.How can I tell if my baby or child has a congenital heart defect? Severe heart disease generally becomes evident during the first few months after birth. Some babies are blue or have very low blood pressure shortly after birth. Other defects cause breathing difficulties, feeding problems, or poor weight gain. Minor defects rarely cause symptoms. While most heart murmurs in children are normal, some may be due to defects.
6.How serious is the problem? CHD’s are the most common birth defect and are the number one cause of death from birth defects during the first year of life. Nearly twice as many children die from CHD in the United States each year as die from all forms of childhood cancers combined. (author's note....Can you believe this statistic?? Another fact is that 5 times the amount of money spent on CHD research is spent on childhood cancer research!!) Over 91,000 life years are lost each year in the US due to congenital heart disease. Charges for care exceed 2.2 billion dollars, for inpatient surgery alone.
7.Are things improving? Definitely. Overall mortality has significantly declined over the past few decades. For example, in the 1960s and 1970s the risk of dying following congenital heart surgery was about 30% and today it is around 5%.
One of the things that I feel VERY strongly about is raising awareness about CHD's. They are everywhere. It is amazing how many people I have met and when they find out about Gracie....they know someone who had a CHD or had a CHD themselves. Why do you not hear about CHD's the way that you hear about other childhood diseases??
Do your part to help raise awareness!!
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